Avery is a 5 month old girl who was recently diagnosed with Spinal Muscular Atrophy Type 1. This debilitating disease will take her life. Her family has created Avery's Bucket List to chronicle her short life and to help promote awareness about Spinal Muscular Atrophy.
I have worked with an infant with this disease and it is heartbreaking to watch a child lose motor control while maintaining cognitive skills and awareness. Please take a minute to learn about Spinal Muscular Atrophy.
For more information about Spinal Muscular Atrophy, please visit:
Families of Spinal Muscular Atrophy
Fight SMA
SMA Foundation
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